The Rack Cards are being adapted by state health departments with technical assistance from CDC and NACDD. This is not meant to be an all inclusive history of the movement in general. NIA recently funded Foundations of Representative Engagement, Valid, and Effective Recruitment in Alzheimers Research. Since the meeting, NIA has been working to organize an external group of researchers and community organizations to offer input, feedback, and recommendations on how to develop a successful AD/ADRD PBRN. 12/29/2021. Starting in 2016, with facilitation by the Alzheimers Association and in close collaboration with experts from government, private, and academic sectors, NIA led an effort to develop comprehensive goals and strategies to enhance recruitment into clinical research, particularly focusing on underrepresented communities. This group is helping to ensure that materials are available in Spanish, thereby addressing the needs of Spanish speaking participants, and to assure research capacity (with both materials and staff training) for assessment in Spanish. The sheer volume of federal activities to address the pandemic, support older adults at highest risk of COVID-19 infection and mortality, and vaccinate Americans of all ages, is too great to include in this Update and goes well beyond the scope of the National Plan. A key area of focus for ACTC is improving diversity in recruitment and in the clinical trial workforce. ASPE convened federal partners to identify key indicators of progress on the National Plan. CDC works closely with the CDC Foundation and other partners to ensure that disproportionately impacted communities receive the resources and technical assistance necessary to provide COVID-19 related services to older adults. Much of the current evidence on modifiable risk factors is low to moderate quality, so more research is needed to better understand the relationship between potential risk factors and AD/ADRD. By engaging with existing community organizations, risk reduction interventions can be tailored to fit the sociocultural needs of local communities. CDC developed a downloadable care planning tool to assist people with AD/ADRD and their caregivers. NIHB is expanding website content aimed at health practitioners, as well as conducting a virtual Brain Health Action Institute for Tribal Nations. Program participants are providing dementia training to legal services providers, as well as implementing voucher programs to aide in advance planning. Neurology, 2015; 85(6):535-542. doi:10.1212/WNL.000000000000183. The ultimate goal is to increase detection of cognitive impairment and dementia among high-risk populations, including health disparity populations, and lessen cultural and logistic barriers that currently impede both clinical care and research efforts. Functional interpretation of genetic variations has been challenging historically and remains a persistent bottleneck in genetic studies of complex diseases. DoJs EJI website also hosts an elder justice research web page featuring foundational articles, some of which address elder abuse and dementia. These ten new drug candidates target multiple aspects of the disease process including neuroinflammation, proteostasis (e.g., abnormal protein folding), neurogenesis, synaptic dysfunction, etc. The Elder Tree tool is currently being evaluated. Rather, it is entering an exciting new phase with $10 million in funding from a U.S. Department Agriculture program Sea Grant announces $2 million in support of the Sea Grant American Lobster Initiative to address scientific and stakeholder needs associated with this important fishery. The Genome Center for Alzheimers Disease quality control checks and harmonizes all of the genetic data so that when a variant in the genome is uncovered, it can be compared against the data from thousands of other genomes. Planning ahead can help ensure that individuals with AD/ADRD receive care in the setting they prefer, preserve individual and family assets, and maintain dignity. These figures include direct medical expenditures, costs for long-term services and supports (LTSS) including institutional and home and community-based services (HCBS), and two different estimates of the value of unpaid care provided by family members and friends. These grants can be used to update leaking service lines, old plumbing, replace outdated fixtures (sinks, toilets, dishwashers, laundry) with high-efficiency devices, and install new water systems (wells and septic systems) and water efficiency improvements as part of VHIP housing rehabilitation projects. Guidance for increased virtual visits was provided, which allowed multiple commercial applications to be used for communication with veterans and their caregivers. CDC provided funds to the Alzheimers Association through a cooperative agreement to co-develop the third in a series of Healthy Brain Initiative (HBI) Road Maps to advance cognitive health as an integral component of public health. The AtG is a new initiative focused on diverting high school students with IDD away from guardianship to SDM, which allows individuals with disabilities to make decisions for themselves and choose the level of support they need from people and organizations they trust. Following the success of the first Summit in 2017, the second National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers, hosted and sponsored by the National Instituteon Aging (NIA) with support from contributors through the Foundation for the NIH, was held as a Virtual Summit Series in 2020. Several new and ongoing clinical studies are seeking to determine risk profiles for AD/ADRD, especially in the area of vascular risk factors. Property owners are required to match at least 20% of the grant funds, with the option for an in-kind matchfor unbilled services or owned materials. NIH is also continuing to support five research teams that aim to discover biomarkers that will improve the efficiency and outcome of Phase II clinical trials for LBD. If successful, these NIH-supported preclinical drug development studies will result in new candidate drugs that could then be tested in people. The HealthMatters COVID-19 2020 Webinar Series provided 19 webinars supporting brain health through the HealthMatters Program for a total of 6,463 attendees on the webinars and 1,762 YouTube views on the HealthMatters Channel. In 2019, NIA launched Alzheimers and Dementia Outreach, Recruitment, and Engagement Resources (ADORE), a searchable collection of materials designed to support recruitment and retention into clinical trials and studies. In addition to the guide, ACL grantees developed a training session on the basics of dementia for first responders which includes descriptions of dementia, the changes that accompany dementia (e.g., communication, behavior), and important safety and wandering issues related to dementia. In the past year, the AMP-PD program has added data and samples from patients with LBD. DPH Announces Holiday COVID-19 Testing Hours. Genotype information are already available for those HCAP (and HRS) participants who consented to being genotyped. DREAM is a collaboration with researchers at Harvard Medical School, Rutgers University, and Johns Hopkins University School of Medicine to repurpose FDA-approved drugs for treatment of dementia. CDC is taking steps to proactively address issues arising from COVID-19 affecting persons with dementia and their caregivers. Sea Grant helps coastal and Great Lakes communities prepare for and adapt to changing conditions. One grantee created a series of well-received law enforcement training videos to address wandering, driving, and encountering disoriented individuals on house calls. In 2020, NIA and partner federal agencies led efforts to update and enhance the Alzheimers.gov website. The original Road Map focuses on issues pertinent to state and local public health agencies and their partners. Michigan Department of Health A subsequent step will be to identify potential PBRN models and pilot them in communities to assess feasibility and impact on clinical study participation as well as community engagement around participation. AHRQ has awarded three grants for integrating information and communication technology to facilitate aging in place. Grantees will support evidence based or evidence informed/promising practice father engagement activities through the following three broad categories: fatherhood education, case management, and peer-to-peer support to strengthen positive father-child interaction, improve social and economic outcomes for fathers and their families and improve healthy relationships. The Innovative Partnerships grant provides funding to develop regional collaborative networks between Child Abuse Prevention Councils (CAPCs) and community stakeholders, in an effort to improve child abuse prevention outcomes. Healthy CDC has developed a series of web features and podcasts on topics including helping people with AD/ADRD and their caregivers stay physically active, developing care plans for older adults and their caregivers, and the truth about aging and dementia. Planting Prosperity Program Grant RFA Q&A (PDF) 2021 Contributions In 2021, the Cigna Foundation awarded more than $12.5 million in grants to support nonprofits that share our These three events were held in partnership with the University of Texas' Salud!America arm and more than ten community-partners. These providers will also disseminate information on elder abuse, with a particular focus on the vulnerable population of people with AD/ADRD. Since the advent of the National Plan, NIHs planning process for research on AD/ADRD has expanded in inclusion and scope among NIH Institutes and Centers and stakeholders across the scientific and care communities. For example, in 2020, under the Molecular Mechanisms of Blood Brain Barrier Function and Dysfunction in AD/ADRD FOA, NINDS funded four large research teams to examine how damage to the blood brain barrier occurs and how it may contribute to cognitive impairment. A related resource from SAMHSA is the toolkit, Get Connected: Linking Older Adults with Resources on Medication, Alcohol, and Mental Health. Lead Agency: CMMIPartners: NIA, Johns Hopkins University. Projections of future care needs and costs are difficult because the older population is changing in ways that will likely shape the course of cognitive impairment. In Academic Year 2019-2020 (latest available data), GWEP grants provided 906 AD/ADRD courses and training of 146,024 health care providers in AD/ADRD. Under Action 1.A.1, NIH convenes a series of annual research summits to address a wide range of critical research issues in AD/ADRD, including basic, translational, and clinical research, as well as research on care and LTSS. In 2019, NIH funded a new effort called the IMPACT Collaboratory to meet the urgent public health need to deliver high-quality, evidence-based care to people living with dementias and their caregivers. The trainings include webinars, accredited through EES and TRAIN for VA and community clinicians. Child Care There are anecdotal reports about poor care experiences prior to being admitted to an IPF, or during a stay. USDA Increases Investment in Farm Bills Healthy Food Financing. In 2020, all of the 48 HRSA-funded GWEPs were funded to educate and train the public on brain health, including by sharing resources. ACL programs support the implementation of 17 evidence-based interventions, preparing some to be taken to scale across the Nation. In 2017, ACL received Office of Management and Budget authority to collect data on professionals trained through ADPI grant funding. Privacy Policy Below are the five that form the foundation of the National Plan: This is the ninth Update to the National Plan. In 2021, NIA provided 1-year supplemental funds to five VA sites to facilitate subject recruitment to NIA-funded studies. To ensure broader input, NIA gathered feedback on the recruitment strategies through the IdeaScale crowdsourcing platform. IHS continues work developing the Extension for Community Healthcare Outcomes project model to support Caregiver Coaches in Tribal Communities and to identify additional training for caregiver support through public health nursing. For applications submitted in 2018-2020 NIA has supported nine grants under this initiative. 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